This morning I met with the dietician and integrative medicine rep. We decided I needed to write down all the amounts of vitamins and minerals in the supplements and healthy organic formula that I want to give to Raquel via tube. It’s been a good exercise, but tedious. I also mentioned to the PICU doctor that I had requested a visit from a doggie volunteer, and that before returning to the hospital, Raquel had begged us for a dog. She wanted a puppy cocker/retriever mix. The doctor told us she was going to write a prescription for a puppy for Raquel
We also met with the hospital dentist, and he agreed after seeing Raquel’s xrays, that 2 of her bottom molars need to be extracted. There’s a chance they can do it at the same time they do the trach and stomach tube, but that might be a lot at once. I would just like to put her under sedation the least number of times as possible. We are waiting to hear back when everything will be scheduled. I’m praying that this part will all go smoothly.
We talked with a radiation doc. He said we can get started soon. He wants to have her come to get a mask made for keeping still during the treatment. If things go really well Thursday, then she can go first thing Friday morning, but if she’s still recovering, we’ll put it off until Monday.
Physical and occupational therapy came by and we were able to transfer Raquel to a special chair to sit her up a little more and have her legs down, for about an hour. I think it was really good for her. She was awake for a while, so we asked if she wanted to watch a movie. Yes. So I went hunting for movies with lots of music, because I think she likes that best. She decided with Mike on Frozen, but fell asleep about halfway through.
I caught a funny picture right when the nurses and Mike were about to move her back on the bed. They all got distracted by the movie
Per my request, we had a visit from a volunteer and her doggie.
And the music therapist stopped by to drop off a guitar for us to borrow. Mike immediately got it out and started playing for Raquel. So sweet!
I got word from my son Nathan, that the student body government at Cedar High, wants to put together a video of Raquel’s friends talking about her. What a wonderful gift! I’m really pleased and excited about that. Can’t wait for them to put it together.
The evening time seems to be when Raquel likes to move around. She did quite a bit tonight, and waved to my sisters when they came. I like to rub her down with oils (Frankincense, Helichrysum, Myrrh, Lemon, DDR Prime) and scratch her back and scalp. I know she loves this, so I’m making it a nightly ritual. And now we all need some sleep, so thanks for your prayers and good night…